Eventually we wonder… why don’t these treatments work?

Why Treatment Isn’t Working Study

Common factors among those who weren’t responding well to treatment?  Of the migraineurs, the ones who were not responding well to treatment were the ones with a high frequency of migraine, and those whose migraine attacks started before they were 20 years old.Of the tension headache patients, the ones who had a poor outcome from thier treatmentwere again those who had lots of headaches, also those who had coexisting migrainesleep problems, and – a lack of . . . marriage.  That’s right.

“This is a soul under perpetual migraine

I had to post his little article because honestly it does occur to us after awhile.  With all the medications out there, for those of us who have tried and tried and tried… why do we not find that successful combo?  What is it that is complicating the situation?  One thing the study brought up would be the most obvious… high frequency of attacks.  It is simply harder to treat them when they are that frequent and I think the brain just gets wired for all the activity frankly and hieghtened for the triggers, so high frequency is definetely an indication there will be problems with treatment.  Having migraine before the age of twenty years old is another sign and again that might just show how the brain becomes hard hired for it, expecially since it is still developing until 21.

Then of course the co-existing conditions… sleeping problems and such things as fibromyalgia.  That would be me on both counts there.  Yes, my migraines are extremely frequent, but I do not believe they would be if I did not already have FMS and the sleeping problems associated with that syndrome.  Sleep is a big issue for sure, and I get a lot less morning migraines now that I am on sleeping pills than I used to, which means less missed work since I am not waking up with acute migraines as often… I just work up to them in the afternoon.  Anyway, other conditions can complicate migraines in many ways.  For example, other than the sleep issues FMS causes a great deal of muscle pains (less with Lyrica) and with chronic migraines there is a great deal of neck pain… with the both I ended up with pain that spread to my shoulder and down my arm, restricting my ability to move it every time I had a migraine and when the migraine went away it was just extremely sore.  Took six months of physio to work that out.

It is good to know they are looking at the cases of where treatment is not working and trying to figure out the conditions why it is not.  One question that always annoys me to no end is when people ask me why my migraines are so frequent or why they are so difficult to treat.  As if it is abnormal.  It isn’t abnormal, but it isn’t common either.  Chronic migraines are more common than people think for certain and those that do get them chronically do not necessarily have the same issues with treatment.  With all the different forms of triptans and preventatives out there many people find effective treatments.  But there are plenty of reasons for treatments to fail as well and I happen to be one of the unlucky few at this time.  Just the way it is.

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2 comments

  1. Hello, I just stumbled across your blog after choosing to find support online. Indeed, you are right about why some do not respond to the usual prescribed medications.

    The Human Body perplexes me as to the illnesses and ailments people suffer, the degree of it, and certainly how differently we all respond to medication.

    My sister in law (age 30) also suffers with chronic insomnia and migraines. She has not been able to sleep well since birth. She has tried so many different medications and all with different side effects. She now has to take 2 valium per day to get her body to get some rest (this is normally after 3 days of being awake).

    For me with the chronic headaches, we are still in the “trial and error” of finding what works.

    Have you tried Klonopin or Seroquel to help with the sleep?

    I also wanted to ask if you tried Botox yet? My Headache Specialist has it on the list but it will be my last resort if the medicine combinations we are trying do not work.

    I also wanted to ask if Migraines run in your family? My HS tells me that mine is probably genetic even though both my parents did not suffer with migraines. I hate being told: “Its Genetics” or “You just have been dealt a bad hand”.

    I have never been to Inpatient Headache Center, have you?

    Thanks for sharing your journey and making others (as myself) not feel so alone and isolated in the World.

    Like

  2. No, I've never tried Klonopin or Seroquel… right now I'm on zopiclone for sleep.

    I have tried Botox and it did not work for me, but statistically definately worth the try.

    Yeah, according to my neuro I did pull the genetic card unfortunately. Migraines do fall on my fathers side. My father, and I also have fibromyalgia, where we get our sleeping issues from, which unfortunately in my case complicate the migraine situation. Do I guess I was dealt I real crappy hand there. I suspect if I did not have the fibro the migraines would not be chronic and would likely be manageale because I would not have the sleep problems or the enviromentatal sensativities. I don't like it when all the blame is slammed on genetics and then just ignored but it is definately part of the puzzle for sure.

    I have have never been to a headache center myself yet. My neuro has dang near run out of ideas for me and he is thinking of sending me to a headache specialist clinic that is about three hours away, with a very long waiting list… but I think that is a fine idea at this point.

    Like

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