So close and yet so far away

010203(1)

Yesterday I had an acute migraine. I treated it with a triptan. It half-assed worked. The pain came back for the second round of kick ass. I threw my hands up and said ‘you win’ and went to bed.

Round two: I woke up with a migraine hangover from yesterday which really when you look at that on a pain scale was like a 4 but my neck was killing me because it had hurt so much the day before. Still, I thought I could manage quite well at this stage as long as I avoided any triggers.

Then I did my housecleaning which is part of my assigned routine. I was finishing the bathtub I started yesterday  I did the tub, now I needed to do the walls. Can’t do both at once with my nerve damaged hand and my weak FM arms. It’s a two-day event. So I used the same cleaner. And BAM an acute migraine, rapid onset. I can’t use the triptan again cause that will aggravate me side effect wise. I have no figured out a way to use the Toradol shot yet that will not feel like some is using my stomach for kickboxing practice. So I used my tramacet. On a migraine that is what I would say was about an 8 going on 9 at the end there… that is not even close to adequate. So there went the rest of my day. I couldn’t do anything.

It was just one of those days where you think I am on the end of a migraine or the cusp of one… so if I’m very careful I might maintain it. And then some trigger just screws you over.

So two acute and not very well managed migraines in two days. Not even moderate migraines. I just got over my hormonal status migraine so it sort of pisses me off but what can you do? It happens. I have good cleaning products that never trigger a migraine… just the bathtub was Dirty and that requires stronger stuff because my arms are too weak for really good scrubbing, what I did was quite enough. That product was too strong for me. And it was also too damn light. Just too light.

Point is this: I have not had a migraine free day in a very long time. These meds are not working at all. And I am getting a lot of acute migraines, also a bad sign. But they do work on my migraine auras… not the persistent migraine aura, but something anyway. I need a change, but just I think an increase in Topamax which worked well in the past. Verapamil does nothing really for me, so that can be taken out for all I care but if so it might muck up the vertigo and aura… so it depends what replaces it really. Lyrica I like for FM, but for migraines it does nothing, so it depends really on whether the neuro thinks it is necessary or not. I personally think Topamax as primary, maybe a calcium channel blocker of a different sort as secondary and if there another that works for MAV and persistent migraine auras that don’t conflict add that in too.

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2 comments

  1. i have tried umpty preventatives but i am having a little luck with a mood elevator, venlafexine (effexor).

    i noticed that if i did nothing except rest and walk the dog i got about a week off a month (previously constant) we upped the dose to no avail, but then hit on the idea of using the non time release pills. if your abortives are not working for you maybe it's worth persevering with preventatives and monkeying with not just the dose but the delivery method. i am not out of the woods, but this is the first time i have even had moderate success, and if we hadn't have thought of changing the kind of delivery we wouldn't have progressed with it.

    Like

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