I just realized tomorrow is June 1st… that sure got here fast! I seem to have misplaced parts of last week due to a three day acute migraine… if someone finds those days feel free to pass them along. Anyway it is time for Migraine and Headache Awareness month… which means a blogathon to raise awareness! I really enjoy participating in these things and hearing about other peoples experiences. They really do raise awareness as well… with social media these days so many ways to pass along a message and share information.
I think the more awareness we can bring to chronic migraines the better. There is a massive stigma with them. We all have likely experienced it in some form in some part of society. The migraines have a massive toll on our lives as well. I have been known to be pretty blunt about that from time to time. I insist upon it sometimes. It has a massive toll. I want to explain that as clearly as I can. Not to be overtly negative but to express the depth of the experience the best I can… I try just as hard as the next person to conquer my internal demons that insist this pain is pure madness. So yes demons come out to play when I’m in acute pain for days and have this strong inability to sleep. And I will try all methods. I don’t care what is recommended…. well, by serious professionals that is, not by flakes and ‘cure’ salespeople. If it has the chance of reducing just my internal perception of suffering… I’m game. I’ll incorporate any tools into my coping framework if they work because I know for a fact the one I have really wasn’t working with the amount of untreated pain I have. And I want to want to survive. But I sure would like that pain thing treated too. The struggle we have is a constant battle that people do not comprehend… because it is an invisible disability. The see the tip of the iceberg. The facade we wear to function. They make absurd recommendations because they have no concept of all the things we do to just get by as we do. So we share our experiences with each other but hopefully it sheds some light out there on just how brutal this disease is and other headache disorders are as well.
Please see the AHMA site for all details and information. Here is a preview of the months prompts:
- Phantom of the Opera: What do you hide behind your Migraine/Headache Disorders mask? What do you let people see?
- X-Men: Migraine & Headache Disorders Super Heroes: Who in your life goes above the call of duty and how?
- The Hunger Games: “Happy Hunger Games, and may the odds be ever in your favor”: What healthy habits have you adopted to put the odds of better Migraine & Headache Disorders management in your favor?
- Finding Nemo: “Just keep swimming”: How do you keep going in life when Migraine or another Headache Disorder deals you a difficult set back?
- Carousel: You’ll Never Walk Alone.
- Premonition: Where would you like to see treatment options for Migraine & Headache Disorders go in the future?
- Pretty Woman: What do you do to look good when you feel like crap?
- Little Shop of Horrors: “Feed Me, Seymour”: What comfort foods do your reach for when you have a Migraine or Headache attack?
- Mama Mia: Money Money Money: How does living with Migraine or another Headache Disorder impact your financial situation?
- Ocean’s Eleven: Who’s part of your Migraine/Headache Disorders care team? What essential roles still need to be filled?
- Twilight: What power of a vampire or werewolf would you like to have to cope with Migraine pr another Headache Disorder?
- The Box: You are the experiment: What situation in your Migraine/Headache Disorders treatment has made you feel most like a guinea pig or lab rat?
- Sophie’s Choice: What are the toughest treatment choices you face when balancing Migraine/Headache Disorders with other health conditions?
- Letters to Julia: Write a thank you note to someone who has helped you.
- Harry Potter: Write & name a spell for getting rid of a Migraine/Headache attack.
- Riverdance: Have you found a way to work exercise or movement into your life with Migraine/Headache Disorder? What is it?
- Mission Impossible
- Die Hard: “Now I have a machine gun. Ho, ho, ho”: Devise a make-believe weapon to blast Migraine/Headache Disorders out of your life.
- Austin Powers: International Man of Mystery: Migraines & Mojo: How has living with Migraine/Headache Disorders affected your sex life?
- Star Trek: Generations: What role do Migraine/Headache Disorders play in your family history? Do others live with it? Does this make a difference in how you talk about it?
- Walk the Line: How do you balance the need to avoid your Migraine/Headache Disorder triggers with the equally powerful need to enjoy the things that give your life meaning?
- Bruce Almighty: How does spirituality and/or religion help you cope?
- Risky Business: Each time you try a new treatment you take a risk. How do you initiate a discussion with your doctor so you can make an educated decision about trying it as a team?
- Lincoln: Who’s your favorite historical figure who lived with Migraine or another Headache Disorder?
- Men in Black: Migraine Neuralizer: How do you cope with the way Migraine/Headache Disorders can impact our memories?
- Anger Management: Goosefrabba: How do you constructively deal with the anger and resentment that arises as a result of living with Migraine/Headache Disorders?
- Saturday Night Live: How does humor help you cope?
- Misfits. (If you live with Chronic Migraine, incorporate it into today’s post.)
- 2001: A Space Odyssey: “I am putting myself to the fullest possible use, which is all I think that any conscious entity can ever hope to do.”: Write a letter to a fictional Headache Disorders patient encouraging that person to be kind to him or herself. Use the ways you’re too hard on yourself as inspiration.
If some of those prompts don’t inspire you, feel free to use one of these alternate prompts:
- Evita: Don’t Cry for Me Argentina: We don’t want to be pitied, but we aren’t always open about telling people how they can help us. How would you like to be helped?
- Definitely, Maybe.
- Steel Magnolias: “That which does not kill us makes us stronger”: In what ways are you stronger as a result of living with Migraine or another Headache Disorder?
- Temple Grandin: “A school bell sounded like a dentist drill going through my ears”: Many of us have wondered to ourselves, must you live so loudly? How do you cope with phonophobia (noise sensitivity)
- Eat Pray Love: Share your favorite Migraine trigger-free recipe.
And Twitter Hashtags…
- #MHAMBC (Blog Challenge)
- #MHAMTC (Twitter Challenge)
- #MHAMPC (Photo a Day Challenge)
Other more general hashtags that promote Migraine & Headache Disorders awareness in social media: