A Not-to-Do List for Life with Fibromyalgia

This is a great post but the one I need to be reminded about a great deal is: Do not equate productivity with self-worth. Productivity can suffer a lot with pain levels. And my self-worth when I cannot function well can plummet like a rock. Even though I understand that I have these limitations I need to exist within. That comparing myself to others who are healthy or to my past self who was, well, healthier at least… is not such a great idea. Or having these standards I cannot attain. These expectations on myself that are impossible. Setting myself up for failure…And Then thinking that that means I am worth less as a person because I couldn’t push through the pain to achieve an impossible goal. and you know, that is a horrible, horrible feeling to dump on yourself.

Skillfully Well & Painfully Aware


I recently began reading Toni Bernhard’s wonderful book How to Live Well with Chronic Illness.  I was inspired to write this post after reading a section in her book where she outlines her ‘not-to-do list’. Bernhard rightly points out that it takes a great deal of self-discipline to stick within the restrictions imposed on your body by chronic illness.  In my own case I’ve found that most of my self-growth has come from recognizing, accepting and learning to do things differently in response to these restrictions.  I thought I would share my own not-to-to list:

  1. Do not equate productivity with self-worth: in my life before fibromyalgia I made work my top priority. I was in my mid-twenties and trying to start a career. I made a lot of sacrifices in my relationships and personal life in order to achieve these goals.  When all this came crashing down and…

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