Please share your experience with trying to find effective Migraine and/or Headache preventive treatments.
I have had migraine with aura for 20 years, along with menstrual migraines and vestibular migraines (Migraine related vertigo when I was diagnosed) and persistent migraine auras. I likely had silent migraines well before that initial diagnoses given the aura presentation I had; corona auras and visual snow.
But my luck with preventative treatment medication wise has been an arduous journey that hasn’t gone too well for me. I have been a non-responder to medication with One exception to that rule.
I did respond and do respond to Sibelium for the Vertigo alone from the vestibular migraines. Which is a very good thing because it was getting to be very problematic for me. Things like driving, for example, were getting to be an issue. As in, not recommended. All motion was a trigger; from an elevator ride to a car ride. So, yes, this was and is a successful vertigo treatment. And the only successful vertigo treatment I tried.
Also, one preventative that helped me in the past for a very short duration was Topamax. I responded, somewhat, then it failed. I was put on it again a couple years ago. And I believe it helps me, somewhat, with intensity. Hard to say though. Prior to the Oska my pain, daily, was a 7-9. So… not cool. Does it help? I think a little. I did occasionally get the odd 5 to 6 in there before the Oska. But if it is doing something it isn’t doing much of something.
Other that nothing has touched the migraines in all the time of trial and error. Not even my first attempt at Botox. I am making a second attempt. The first go around had a different protocol than they do now. Fingers crossed.
Non-medication wise, I use an external pain device: see Oska Pulse post. It is an external pain device that I use for all my pain but it quite helping me with intensity and somewhat with frequency. As well as with my extreme persistent nausea issue. So it is a different type of prevention. I thought I would see results with FM but with migraines I had pretty much assumed not, since they are so… entrenched. But slowly and surely I did. So that is a sort of prevention I use now daily to manage the pain. I have a lot of low pain days in there now. Well, a lot More. I don’t track but at least 3-4 days a week I am in the 3-6 range. Some days I am migraine free which has been so long since that has happened I literally have no recollection of it. The remainder of the week is 7-9 and I get home and I have to really get using all my resources; ice, magnesium, meditation and the Oska to manage it. But it is quite a lot better intensity wise. Anyway, I am a responder to this pain wise. I should track it. So I have a clearer image. All I know is some days it really astounds me. How late the pain comes. How mild it is. But we all know there are out there other external devices for migraines specifically, and others being researched. I have other pain so this one is ideal for me. People should consider them as an option since the research is there.
Another preventative tool I am using is migraine glasses. I have used both Axon and TheraSpecs. I have photophobia all the time. My migraines are daily, so that isn’t a surprise. And I have FM, which can cause similar issues. The migraine filter is especially beneficial for light sensitivity. It not only helps prevent but helps with light as an aggravating factor.
Anyway, prevention I discovered is about a lot more than medication. I discovered this after years and years (okay decades) of failed medication treatments. Prevention is about alternative therapies like the Oska I use. Or for others, things like acupuncture (this for me triggers vertigo for some bizarre reason). It can be stress reduction techniques like meditation or biofeedback. It can be taking supplements like magnesium and your B’s. It can be lifestyle changes and trigger management.
I use currently:
Supplements: Magnesium, B complex
And in the end, some of us are still going to be chronic. Because that is the way our brains are. They have become really sensitive to triggers. Pain begets pain. And we have to move on to pain management techniques. Or add that to the equation.