fibromyalgia awareness Uncategorized

Lady Gaga and fibromyaligia

Lady Gaga opens up about living with an invisible illness

Lady Gaga Reveals She Suffers from Fibromyalgia as She Opens Up About Her Chronic Pain in New Documentary

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Lady Gaga has opened up about having Fibromyalgia and is going to be candid about it in her documentary. Fibromyalgia is a syndrome that needs this sort of representation. Someone visible to be seen to be struggling with it and getting extensive treatment to manage the pain. It isn’t the sort of syndrome that gets much attention. So I am proud of her for putting that out there. And those of us who advocate for awareness are glad to see someone putting her story out there to a broad audience in such a way.

Pain Network News article goes into some of the treatment she is using from massage to ‘sitting in a infrared sauna wrapped in an emergency blanket‘ and alternating between cold (ice baths) and hot treatments. As well as Gyrotonic Workout,

 

I was so overwhelmed by the empathy, confessions & personal stories of chronic pain in response to my previous post I thought what the hell. Maybe I should just share some of my personal remedies I’ve acquired over the past five years. Everyone’s body and condition is different U should consult w ure Dr. but what the heck here we go! When my body goes into a spasm one thing I find really helps is infrared sauna. I’ve invested in one. They come in a large box form as well as a low coffin-like form and even some like electric blankets! You can also look around your community for a infrared sauna parlor or homeopathic center that has one. I combine this treatment with marley silver emergency blankets (seen in the photo) that trap in the heat and are very cheap, reusable and effective for detox as well as weight loss! In order to not overheat my system and cause more inflammation i follow this with either a VERY cold bath, ice bath (if u can stand it, it’s worth it) or the most environmentally savvy way is to keep many reusable cold packs in the freezer ( or frozen peas’ n carrots’!) and pack them around the body in all areas of pain. Hope this helps some of you, it helps me to keep doing my passion, job and the things I love even on days when I feel like I can’t get out of bed. Love you and thank you for all your positive messages.

A post shared by xoxo, Gaga (@ladygaga) on

 

That is the thing for Fibromygia that she demonstrates well. We have to find our own treatments that work for us. And sometimes that takes a long time. And sometimes you have to think of new things to try. But when you find your path it can help you manage the pain and help you cope.

I do only a few basic things for FM a) exercise b) magnesium- Epsom salt baths, magnesium oil or magnesium in liquid form. c) Oska Pulse and d) slow release tramadol called rilivia and e) FibroCane supplements. For pain anyway. And that is what works for me.

Also Rhodiola for fatigue, because fatigue is another major issue all on its own. And B12 for fatigue as well.

And then a sleeping pill for sleep. Because my sleep is horrendous.

And just pacing and moderation, as we all know, goes a long way. Staying within those limits.

I am glad to see we have some star power willing to share her struggles though. And also discuss how she lives and works with her condition. Because having it is one thing, coping another and we have lives to live. We have to find ways to manage the pain, fatigue, sleep dysfunction and cognitive issues somehow. It will be interesting to see what she says in her documentary and how much awareness it brings to fibromyalgia as a syndrome. We need the awareness for sure.

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