chronic pain coping coping with CM coping with FM Uncategorized

Migraine free day and low pain days

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So yesterday I had a No Migraine Day! An event worthy of celebration, always.

Yay! The migraine is gone, the migraine is gone! Oooh I moved. The migraine is back, the migraine is back. Celebration best done... carefully..png

 

Anyway, today I did have one. Lower level. Around a 6 but I took a triptan for it because, well, it was the Worst I had all week so the First triptan I have actually taken this week. So I did. And it worked quite well. So the rest of the day was great. But the migraine is starting to come back now at about a 5, but it is almost time for bed so I’ll sleep that off pretty good. But most of the week was pretty much 4-5 range. Mild migraine wise. Some aura fun, tinnitus, aphasia, and slight dizziness. And photophobia, of course.

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The one thing I have noticed about having such good intensity levels is that I really, really hate bad pain days. Because now I have that contrast. Good vs really sucky. And quite frankly I am astonished I had any capacity to endure that every day the way I did.

 

At the end of the day, we can endure much more than we think we can.

We can indeed endure much more than we can think, but we shouldn’t have to exist in that survival mode like that. Certainly not for long durations. It was hell, no two ways about it. This less intensity deal just is a contrast that is so profound to me I can even explain how different it is. Bad days happen though, still. In clusters usually. About twice a week, on average. Not this week, or every week, but I would say statistically they do when you account for hormonal migraines which are generally a bad time right there. And every time I am reminded, this was my life, every single day of the year before. Every damn day. Non-stop. No migraine free day. No lesser intensity. No break. Nothing. Just always 7-9 pain. On top of the FM pain, that also wasn’t treated.

Pain is complicated, sure, and treatment is difficult. But I think we all deserve a little effort put into pain management such that That isn’t our life for a couple of decades. I know I could have done without it.

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Anyway, tolerable pain is good pain. Functional pain. I can deal with this pain. Good days. Been going on for some time now. And I love good days. And we all deserve good days. Don’t we?

I suppose anyone without chronic pain would find it odd. That This every day pain is better than the every day pain I had a year and a half ago. But Intensity Matters, man. We have chronic pain, it isn’t going anywhere. FM for example, is going to be there whether I like it or not. My migraines are chronic, as of now, until new treatment perhaps does something to make them otherwise and I have to deal with that. So pain every day it is. So Intensity is a Major Factor. It is one factor we can alter. The other factor we can alter, is how we perceive and react to pain, but that is on another level.

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13 comments

  1. Intensity does matter, and you’re right about having that contrast. It’s odd because I was talking to my mother the other day saying how I wasn’t sure how it would feel to be ‘normal’ any more in certain ways, to not have some of the pains and problems I do, to feel free from them even briefly. But like you I have better days, lower level days, that show me just how bad the bad days are and vice versa. Huge hurrah for the migraine free day yesterday though! Here’s to hoping you get a repeat of this soon..! 🙂
    Caz x

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  2. Yay!!! No migraine! I love days like that! Your life sounds like mine 😫 I love your outlook. I’m working hard on getting to that place! It is just so damn difficult to get your mind in a place of peace. Mine just keeps fighting to get my body back to were it was “before.”

    Liked by 1 person

    1. Maybe because I had no real good ‘before’. My chronic pain started pretty young. But the migraines at 20. And they really were quite the straw that broke the camels back. But I do know there will never be no pain, just better pain. But better pain, that is pretty good, eh?

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      1. I also have suffered with chronic migraine since the age of 15. I’m 34 now and have been having fibro problems for the past two years, was officially diagnosed last March…keep fighting my fellow WARRIOR!!! Better pain is the goal!

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      2. I am so sorry you are adding FM to the mix. It does complicate things quite a bit. I would say my FM is fairly moderate but the combo is brutal. When they combined, I had some serious issues from then on. Well, once the migraines went chronic that is. But better intensity on the migraines lately is at least giving me some better quality of life. Better pain! Gotta take what we can get!

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  3. I’m celebrating with you! Hoping for more good days.
    I’m having a similar issue of contrast. Since I haven’t had good days in 13 years, it rocks my world in the best possible way, but the whiplash back to the week or month before another good day is incredibly difficult on my psyche. I’ll still take it! But I do understand where you’re coming from.
    And no, we absolutely should not have to just endure it.
    Is it the OSKA giving you more better days?

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    1. Yeah, the OSKA is sort of dampening my intensity in a way that makes them fairly tolerable. With the occasional migraine free day. I do have bad days in there still. Instead of like always in the 7-9 range every single day, it is more like a 4-9 range, but more of a regular 5ish. Took about 90 days of regular sustained treatment for it to do anything though. I was using it for the FM and didn’t anticipate it would do anything for the migraines, because, well, nothing ever does. And it was this slow improvement. I am now doing Botox too, so maybe I will even get a better improvement. Although, I was a non-responder the first go around. I think maybe the combo might do something more for me.

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      1. I’ve been considering the OSKA because the RSD/CRPS community has been buzzing since it came out but I hadn’t heard much from head pain disorder people- and that’s where my worst pain manifests. It’s expensive, so it’s very good to hear your perspective on it. Last winter was absolutely dreadful with occipital neuralgia, clusters, and chronic migraine pain. This year, I’m trying to get ahead of it!
        I hope Botox does well for you. It helped me- but not in the ways I expected. And some of the positive impact took months to notice. I still have positive results from Botox which was actually a few yrs ago. It specifically eased my TN. I hope the more your nerves calm from the different treatments, the more they want to/learn to stay calm and low pain!

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      2. It is expensive for sure but the value is certainly there. I can’t live without it now. lol. I love it so much. I am all for pretty much using all sorts of things together to manage my pain. The OSKA is a big one for me but I do a lot of other things as well, as we all do. If you do decide to give it a go I have a a coupon code for my blog which is BRAIN which will get you 55 bucks off, which is something anyway.

        I haven’t noticed anything from the botox yet, but it is early. I am told with previous non-responders it can take some time to even see any results. So I am tracking my migraines once again. I wonder if I will even notice anything though, since the OSKA is already impacting intensity? What if the botox just does that? I wouldn’t even know then. But if it does something for frequency… that I will notice. I notice every migraine free day I get now, since it was non-existent before. An increase in that, will be something I would note.

        You have a serious pain load with the occipital neuralgia and clusters on top of the migraines. Sorry to hear about that. Clusters I have heard are the worst pain a person can even have. My brother has cluster and migraines. It has greatly impacted his life.

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      3. Maybe you won’t be a non-responder on your next set of injections. That would be so nice for you to have some better days for the holidays this year.
        Thank you for the coupon code.
        Yes, it’s very very bad. It’s because my RSD spread up into my brain/head that’s why so many things going on now. I’m on a better med plan now at least. I’m sorry to hear your brother gets Clusters. Will he also try an OSKA?

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      4. He might try one. He is very adverse to medication, as he has seen me go through so many and have so many side effects and poor results. But I have told him, that is me, not him. And besides his situation is entirely different. But he would be more open to treatment that isn’t medication for sure. I am more of a medication and alternative treatment sort of person. Whatever works, I’ll do it. I haven’t really responded to medication aside from one excellent one for the vertigo that comes with migraines, that one works great one that.

        I knew a lady with RSD in my pain group at the pain clinic. The only person in real life I have known with it although I know many others online. And she had one impressive perspective on pain that I envied at the time. And when you meet someone with pain as severe as yours you wonder how they cope, when you can’t cope with your level of pain. It then makes sense when people who have no pain ask you ‘how do you handle the pain’. And you think ‘because I must’. But I thought the exact same thing. She had this level of acceptance that I hadn’t attained. I was severely depressed at the time and not coping in the least bit. And I thought if only could cope as well as she was, just manage the suffering from the pain. Just a little. But of course, I only met her in group. Not behind closed doors. We never know the suffering and pain of others behind closed doors. And the group Was basically to help us manage and cope with pain, but it was a very basic course. Some of us, it was been there done that sort of thing. But it was all new to many of them. I often wonder how she is doing with her battle. I went on for further treatment with the psychologist one on one for my depression, and medication for it as well, which vastly improved that side of things. But I didn’t go on to the regular second level group meetings, due to it being so far from home. It would have been great to be able to just have real life contact with people who know what you are going through. It helps seeing that we all experience the same things and have the same struggles. It was a beneficial group for sure.

        I am glad you are on a better med plan, that always helps going forward. Treatment of pain is so very complicated, but it can be damn expensive as well in the long run until we find exactly what works for us.

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