Symptoms

PoTS

Postural orthostatic tachycardia syndrome (POTS)

You sometimes you just have to diagnose yourself. My doc thinks my vertigo, disequilibrium and lightdeadedness, dizziness… is vestibular migraine. But it isn’t presenting like I know them to be.

I am fine lying down. Not so good sitting up. And horrible standing up and moving. The more I move and get about in the day, the worse it gets. I feel weak and trembling when I stand. The lightheaded effect and dizziness is nasty when it progresses. I get confused and disorientated. I’m nauseated.

I looked up POTS and vertigo can actually happen with them. So there is that fact.

It can also be more chronic. So there is that fact.

And I have all the symptoms, so there is that fact.

My doc at one time thought I might have it.

And my heart rate does in fact jump more than 30 bpm when I stand up. 72-115 just when I checked now. And I do in fact get dizzy spells from standing. I pretty much always Have. But what is happening now is substantially worse since it isn’t just when I stand… it is consistently when I am upright and then the almost pass out when I stand.

I have joint hypermobility syndrome and POTS is very common with it. Very common.

It could be why I feel so wiped out when I stand and why I can’t seem to stand for very long at all. That doesn’t seem like vestibular migraines to me.

I will have to be adamant she sends me for a tilt table test. I really think I am right about this one.

 

Advertisements

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out / Change )

Twitter picture

You are commenting using your Twitter account. Log Out / Change )

Facebook photo

You are commenting using your Facebook account. Log Out / Change )

Google+ photo

You are commenting using your Google+ account. Log Out / Change )

Connecting to %s