So your friend had a long day at work and is tired And you have fatigue And they say 'Yeah everyone gets tired sometimes' So what is the difference? I'm tired, I'll go to bed early today I'm fatigued and carried a lead blanket of it all day. Dragging my butt through the day. And … Continue reading Chronic illness: Tired? Or fatigue?
Do you tell people about your chronic illness? Why? And why not? For me, it is a matter of having an invisible disability (obviously more visible now with the cane issue). With an invisible disability, there is a lot of revealing and there is a lot of concealing. Because we can decide what level … Continue reading Do you tell people about your invisible illness?
When you are healthy and suddenly become chronically ill there are a lot of adjustments that we have to make. When we are chronically ill and become worse, again we have to find that place of acceptance and coping. But sometimes we blame ourselves. Like it was something we could have avoided. Like our body … Continue reading Chronic illness: The blame game
Pain perception has a lot to do with how we cope with pain. It is just a fact. Pain has an emotional factor to it. We are limited in our capacity to function. And as a result, we develop ideas about our pain experience. But remember this always, pain memory is fallible. Someone with temporary … Continue reading Fibromyalgia: pain perception and recollection
You made me a, you made me a believer, believer (Pain, pain) You break me down, you build me up, believer, believer (Pain) Oh let the bullets fly, oh let them rain My life, my love, my drive, it came from (Pain) You made me a, you made me a believer, believer -Imagine Dragons With … Continue reading Chronic pain: a story in quotes
It is odd having an invisible disability. We are expected to perform like others, but we have some major limitations. But really I feel like I am melting into invisibility. That the stagnation of being unable to function is wasting away life. Wasting away quality of life. We have an invisible disability. We are not … Continue reading Don’t melt into invisibility