So sometimes us chronic illnesses bloggers write books because bloggers are writers. And we have things to say, man. Lots of things that cannot always be stuffed into a blog post. Anyway, this post if for you guys all to check out some of those books by those bloggers who have. Other times people with chronic illnesses write because we have a story to tell. And it is a story we want to be heard. And sometimes we write because we have research to share.
Including myself. If you are not aware I have a chronic pain humour book. Yes, humour, if I don’t laugh I will cry. And I don’t feel like crying. So I laugh. Anyway. It is called The Chronic Pain Manual: The really, real manual on pain. So check it out if you want. Trust me you will find it very relatable.
1- FibroWHYalgia by Susan E. Ingebretson When Susan Ingebretson found her health spiraling out of control, she wanted to know why. Her tenacious research into the causes of chronic illness led her through a maze of traditional and nontraditional healing methods. Written with wit, wisdom, and warmth, FibroWHYalgia is a navigational tool that guides readers from chronic illness toward chronic wellness. Included are detailed descriptions for making nutritional, fitness, and stress-relieving lifestyle changes. Susan Ingebretson invites anyone with fibromyalgia and chronic illness to come down from the spectator seats and participate in restored health.
Also make sure to check out her new one which is officially available on Tuesday… and looks quite cool: Get Back into Whack: How to Easily Rewire Your Brain to Outsmart Stress, Overcome Self-Sabotage, and Optimize Healing from Fibromyalgia and Chronic Illness
2- Positivity in Pain- Finding Joy and Happiness Despite Pain by Jennifer Corter
3- Dear Chronic Illness – by Pippa Stacey- ‘Dear Chronic Illness’ features a collection of short letters written by young people, addressed to their long-term illnesses and impairments, detailing what they would like to say to them. The letters are not your typical sob stories, and provide a light-hearted and humorous commentary on the writers’ various experiences, yet they also give insight into the challenges of navigating life whilst learning to live with their conditions.
4- Within these four walls– by Mindfully Evie- “Every word written in this book was written from within the confines of my home. Spanning over nearly three years this book is a testament to my time being housebound and proof that despite all the suffering, there is always happiness to be created, peace to be unearthed, and a life to be lived. A journey of self-discovery and personal growth, I hope this book may offer you comfort, inspiration, and wisdom, whatever path you find yourself on. And I hope by sharing my story and imparting my thoughts, it may help you in some small way too.”
5- Managing IBD A Balanced Guide to Inflammatory Bowel Disease– By Jenna Farmer- Inflammatory bowel disease (IBD) is the term that includes Crohn’s disease (which can affect any part of the gut) and ulcerative colitis (which affects the colon) – two chronic auto-immune conditions that cause gut pain, whole-body symptoms and poor digestion leading to nutritional deficiencies. Both are on the rise in the developed world and are newly affecting developing economies such as China (where the author was actually diagnosed). The link with the standard Western lifestyle is evident, yet what elements of that lifestyle can be modified to make a difference? And how can sufferers live with symptoms and ‘flare ups’ that do not respond to treatment and/or lifestyle changes? What is the real-life experience of IBD and what can be done to take back control? Jenna Farmer offers an holistic and positive guide to living with IBD, combining conventional, nutritional, stress reduction and other lifestyle approaches, drawing on her blogs, ebooks and website http://www.abalancedbelly.co.uk. Throughout, the book is ‘illustrated’ with case histories from Jenna’s blog and other contacts, and from her own experience of delayed diagnosis and listening to her symptoms.
6- Gotham Girl Interrupted– By Alisa Kennedy Jones- From irreverent NYC blogger Alisa Kennedy Jones comes an account of her “misadventures in motherhood, love, and epilepsy” that James Patterson calls “smart, harrowing, heart-warming, and very funny.”
What do Da Vinci, Agatha Christie, and blogger Alisa Kennedy Jones have in common? If you said “timeless artistic genius”, stop sucking up–the answer is ecstatic epilepsy. In this hilarious and moving dispatch from the frontlines of neurodiversity, Jones chronicles life with these terrifying-yet-beautiful grand mal seizures. Characteristic of Jones’s condition are attacks which leave her with what Zen Buddhists sometimes refer to as a “beginner’s mind”: a vast, open expanse of headspace, coupled with a creative euphoria.
7- Take Daily as Needed– by Kathryn Trueblood- I am currently reading this one. It is told as a story and it is a complex life story complicated by chronic illness. “Maeve Beaufort’s family is messy and complicated, rife with competing demands, difficult compromises, and on-the-spot judgment calls. She is the single mother of Noelle, who has anaphylactic reactions to nuts, and Norm, a nonconformist child whom everyone wants to diagnose. Her father is spending his retirement on high-ticket items he doesn’t need, her children’s teachers are suggesting medication, and her mood-swinging mother is threatening to move in. Newly diagnosed herself with Crohn’s disease, Maeve feels as though she is failing herself, her parents, and her children. But with spirit and determination—and a healthy dose of survival humor—she gives it her best go. Anyone who has ever felt overwhelmed, underappreciated, underpaid, and underwater will find a kindred spirit in Maeve.”
8- The Self-care Project- by Jayne Hardy- The Self-Care Project is for those who have been feeling off-kilter for a while but have not been able to put the finger on the ‘why’. It is a no-nonsense, practical journey to help you do just that. It’ll walk you through the case for self-care (why it’s so darn important), why it isn’t selfish at all, help you explore what self-care means for you, what your obstacles might be and provide advice on how to chisel out daily space for self-care in a practical, achievable and realistic way.
9- A Girl Behind Dark Glasses– By by Jessica Taylor-Bearman- From a darkened world, bound by four walls, a young woman called Jessica tells the tale of her battle against the M.E Monster. The severest form of a neuro immune disease called Myalgic Encephalomyelitis went to war with her at just 15 years old. From beneath her dark glasses, Jessica glimpses a world far different from the one she remembers as a teenage school girl. This true story follows her path as she ends up living in hospital for years with tubes keeping her alive. This harrowing story follows the highs and lows of the disease and being hospitalised, captured through her voice activated technology diary called Bug’ that enables her to fulfil her dream of one day becoming an author. It provides a raw, real-time honesty to the story that would be impossible to capture in hindsight.
10- Melissa vs Fibromyalgia: My Journey Fighting Chronic Pain, Chronic Fatigue and Insomnia– by Melissa Reynolds- Melissa Reynolds has fought Fibromyalgia since she was 14 years old. Only, she didn’t receive a name for her invisible opponent until she was in her 20s. Unfortunately, the name of the illness did not come with help.
However, she took matters into her own hands and in seven years, she went from miserable and barely coping with life to thriving.
Using a combination of research and personal trial and error, she has managed to bring her pain and fatigue levels down and minimise the effects of the debilitating brain fog by using everything she has written about on her blog MelissavsFibromyalgia.com.
With a passion for research, health and wellness, Melissa combines her findings (both research and anecdotal evidence) with personal experience and hopes that sharing this knowledge will make even one life a bit easier.
11- My Beautiful Detour: An Unthinkable Journey from Gutless to Grateful– By Amy Oestreicher-
An estimated 70 percent of adults in the United States have experienced a traumatic event at least once in their lives and up to 20 percent of these people go on to develop posttraumatic stress disorder, or PTSD. An estimated 5 percent of Americans—more than 13 million people—have PTSD at any given time.
Amy Oestreicher was one of them. So, what happens when an ordinary teenager has to turn into a warrior just to survive? And can the journey through Post Traumatic Stress Disorder really become an “adventure?”
12- Thriving in the Workplace with Autoimmune Disease: Know Your Rights, Resolve Conflict, and Reduce Stress– By Holly J. Bertone- Thriving in the Workplace with Autoimmune Disease is the first book ever to educate individuals specifically with autoimmune disease on their legal and disability rights in the workplace. The book was born out of author Holly Bertone’s personal and painful experience and lack of resources available specifically for individuals with autoimmune diseases. She walks you through the basics of navigating FMLA, EEO, reasonable accommodations, working with your boss, and then provides much needed resources to help you find that critical balance between taking care of your health and managing your symptoms at work. Having an autoimmune condition or any other kind of invisible illness can be isolating. You may look and act totally fine on the outside, but you feel like your insides are slowly killing you and all you ever want to do is crawl under the covers and go to sleep. It’s difficult enough for your family and spouse to understand what you are going through. It’s especially difficult in the workplace when your employer can’t “see” your condition and doesn’t understand why you are asking for flexibility or accommodations. You feel like no one understands. You feel like you have no voice. This book is not going to tell you to give up and become a victim. The mission of this book is to empower you with knowledge so that you can rise above your illness and challenges and thrive both at home and in the workplace.
13- When Bodies Break: How we survive and thrive with illness and disability – By Cameron B. Auxer- Chronic illness is life-changing and life-challenging. We long for our active social lives, our favorite activities, our jobs. Our families must adjust to our changes, limitations and struggles, both physical and emotional. Others can be timid or frustrated when trying to relate to us, especially if we don’t look sick. Or they avoid us altogether. Opportunities vanish.We are faced with enormous changes and challenges, and it is up to us how we respond. We can sulk and spend our lives wishing things were different. Or we can create new lives that embrace the changes, adapt with the challenges and encompass the things that truly give us joy! We’ve been offered this time to reassess our abilities, our desires, our faith, our passion and our purpose and, while being realistic as well as creative, we sculpt a new vision for our lives. Inside this book, you’ll meet 32 inspiring, resilient people who share their stories of struggle, strength and survival through chronic illness. You’ll learn how we became Chronic Illness Warriors, rising out of the ashes to soar, despite our limitations, many donning pajamas as our super-hero attire! We share our experiences in navigating life’s hurdles with chronic illness, including health care, daily life, emotions, self-care, finding our passion and purpose, and creating income. Consider us your Chronic Illness Warrior support team!
14- The Pain Companion: Everyday Wisdom for Living With and Moving Beyond Chronic Pain– By Sarah Anne Shockley- This is a great book and I quite enjoyed it. You can see my review of it below in the see more links.- Where do you turn when medication and medical treatments do not relieve persistent, debilitating pain? What can you do when pain interferes with work, family, and social life and you no longer feel like the person you used to be? Relying on firsthand experience with severe nerve pain, author Sarah Anne Shockley accompanies you on your journey through pain and offers compassionate, practical advice to ease difficult emotions and address lifestyle challenges. Her approach helps reduce the toll that living in pain takes on relationships, self-image, and well-being while cultivating greater ease and resilience on a daily basis. Dozens of accessible, uplifting practices guide you every step of the way from a life overcome by pain to a life of greater comfort and peace. The Pain Companion also offers profound insights for medical practitioners and invaluable guidance for anyone who loves or cares for others in pain