Time for A Chronic Voice September Link up Prompts
Prompts:
- FEELING
- GRUELING
- TEMPTING
- RUNNING
- MENDING
This is Pain Awareness month and I will be blogging about that some this month as that is a very important topic to me.
Autumn is coming here soon. I feel the weather cooling. Some of the leaves are turning. It is my favourite season. Not too hot. Not too cold. Perfect.

Feeling
I feel like emotionally I am working through some crud this year which is slowly improving my self-worth. It has been a long process because the beginning of the year I had a real blow to that self-worth but I realized I shouldn’t let others affect it so. It is mine and mind alone. And it should hold up against others actions. So I needed to work on it. And I have made some headway.
At the same time I feel stagnant and some sort of ennui because I am disabled and isolated. Some days I just feel a little empty. Like my cup just isn’t full enough with this life I have. Yet, I cannot fill it with more because of my current limitations. And I cannot do a thing about my current limitations unfortunately. I just can’t work around, or pace around it, this infernal dizziness and vertigo. I must rest a whole lot every day.
Yet other times I feel fulfilled by my creativity. So maybe I should take solace from that. That I can do my writing and art. And I still have that capacity between all the rest.
My recent watercolour

Grueling
This year has been a hard one financially and there is nothing I can do about that. My spouse lost his job and was on unemployment for a long time. He recently got a seasonal one which will end soon and be back on it. Even so we struggle to pay the bills. I am trying to get additional social assistance from provincial disability (called AISH in Alberta) but it will take some time if I am approved.
I have been very fatigued. And in a lot of pain. It has been excessively difficult to do minor housekeeping at home. I do one minor thing and it Lays me out. Life is just so exhausting lately. I am not having a pity party about it or anything. It is just a bit of an issue. I try to do something around the house and then I can’t function the rest of the day. Bit problematic. If I want to go out and socialize for a short duration- I have to pre-rest for most of the day.
It is a life of inches. Grueling. But I do not complain. My mood is stable. Mentally I am doing well. But physically functionality is low.
Tempting
Oh I am tempted by many things. I took some courses and I did them. It was for intellectual stimulation and to help me feel engaged. Which they did. But I am tempted to utilize them for income. I know I would be good at it. I know I would be useful and helpful.
However, to do so I would have to be able to sit upright at the computer at Least 1 hour a day, if not more. I cannot do that. Not without severe dizziness. So… that shot down that thought. Then the extra time and work when I do not have the extra energy from the fatigue that comes from the vertigo. So it is tempting but I have come to the conclusion… unrealistic and not feasible at this time. I just Wish it were.
Running
I am trying to follow my doctor’s directions and exercise but my pain has been running the show. Well, the dizziness and vertigo are massive issues as well but I was going to start with walks. But my leg pain is too much and my foot pain is like walking on fire. So I want to try but at the same time I would really like the pain to be managed at least modestly.
I think is many ways this is a hard year for us all. It is just one thing after another. Financially many people are suffering. Health-wise the same. Some people are not doing well emotionally and mentally. And it just seems like nothing is swinging our way. But it can’t rain every day. Things will eventually change and settle. One way or the other.
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Thanks for joining us again Nikki, and you’re the first to share! I totally get that horrible stangnant feeling, and am Glad that you’re somehow managing to hang in there. Btw just to let you know the URL you entered in the main linkup page is wrong so it’s not appearing in the widget. 💕
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Oh that is why it would go in right! I will do it again
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I feel your pain, I want to do so much but my body just doesn’t keep up with my brain, even housework floors me. It’s so frustrating isn’t it. I hope you get your money worries sorted soon.
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I think the financial worries will be around for a long time. Given we can’t resolve them now with everything changed due to the pandemic.
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Hey Nikki, I hear you when you talk about how your pain and other symptoms are often running the show with plans falling by the wayside as a result. I am exactly the same and know how frustrating it is when you want to things and follow advice from doctor’s but symptoms just won’t allow it! Still, it sounds like you are managing wonderfully and glad you are hanging in despite the many challenges these times are bringing us all. Take care and continue hanging in!!
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It has been difficult lately for sure. I think the weather is not helping at all right now and my pain is making it really hard to get around when you add in the vertigo issues. But I do what I can.
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Hi Nikki, I completely understand your frustration about the work and money situation, and I hope you can find a way forward very soon. We are all facing challenges, but we keep going, and there is always a bright side somewhere 🙂
https://spookymrsgreen.com/2020/09/14/my-chronic-pain-journey/
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I hope so. It is going to be a rough ride for a long time I think, for many of us
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I wish I could share these articles with other chronic pain friend, but need a “mail” button, no one has. Could it be added? Thanks, Pat Jackson
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I think i do that. Give me a day a check back
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I added it on there for you. 🙂
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