This blog is about Fibromyalgia, chronic illness and chronic pain. I myself have chronic migraines, Fibromyalgia, asthma, hypothyroidism and hypermobility syndrome. I introspect about the experience of living with chronic illness and chronic pain. I also will post research and articles. Occasionally you will see book reviews or item reviews of things I have found. I write around average two posts a week but occasionally when I have more to say it will be more. I try to post Tuesdays and Thursdays, however since that it late at night I sometimes end up the next days time.
On my Header menu you will see a Fav Post and in there you can check out some of the favorite viewer posts. There is also a running favorite post along the side bar as well. The final two categories ‘All drugged up’ are my current prescription protocol and ‘my novels’ is my fiction writing section as I write fiction as well. Feel free to explore.
I have been chronically ill in one way or another since I was a child starting with hypermobility syndrome that gave me a joint pain and insomnia. It wasn’t until I was a teen though that the joint pain, fatigue and insomnia picked up the pace and I was having difficulties. Skipping school to sleep and so forth. However, it took until I was 20 to be officially diagnosed with Fibromyalgia. I received no treatment for it though. I was told I was too ‘young for it’. Not sure if that was ageism or some gender bias thrown in there as well. Either way it took until I was in my thirties to be put on Lyrica. I began to get migraines with aura when I was 20 as well. These progressively got more frequent as time passed. I developed persistent migraine auras. And migraine associated vertigo. Somewhere around 2000 they became daily and have been there since. Migraines they did however treat quite a bit or attempted to. I haven’t really responded to preventatives except mildly to Topamax.
The impact of all this has taken a toll on my life and career. Or what career more like. I was on an academic path when the migraines gained severity. I was finishing my Masters. It became clear I wouldn’t be able to go for my phd until I had some sort of effective treatment. I didn’t know at the time the most effective possible outcome for a preventative was 50% and I’d never see it. So I took time off to find more effective treatment. Which I never found, but did discover rapidly that working was much worse due to painsomnia and sleep deprivation issues. So I had a hard time just finding a job to maintain. I did eventually give up on the idea of even attaining my phd and just finding a career. To that end I found a job at a bank as a lending/investment officer. However the untreated pain was far too intense. Unmanaged pain and full-time work had the best of me. I tried to push through it and did for years. But in the end it led to a suicide attempt. Then another. Things changed for the better when I changed doctors, was sent to the pain clinic and a new neuro as well as put on a mood modify medication that didn’t have the side effect of suicidal ideation for me. The pain clinic told my straight up I could only work part-time so I changed roles to a teller at the bank to reduce my hours. And even this is difficult to maintain, but far less stressful.
My coping strategies have improved and evolved over time. However I still deal with depression associated with chronic pain that compromises my coping at times. It is a difficult road we travel. I don’t always cope well with it.
- Email: nikki3albert@gmail.
- Making Invisible Disabilities Visible– on Facebook Making-Invisible-Disabilities-Visible
- You can Twitter me for BrainlessBlogger related things, migraine related, FMS related, @nikki_albert
Articles In Print or with digital magazines.:
Essay in Migraine Expressions book called ‘To All Those with Migraines: I, too, share your brain cramps.’
Reprint of article ‘Fibromyalgia and chronic pain in danger of being labeled a mental disorder’ in UK Fibromyalgia, April 2013.
Fibromyalgia AWARE magazine. Issue 2: “Finding Slumberland” in 2015
Guest blog posts
Positivity in Pain
Of all the things I have lost I miss my mind the most
Winning some life in addition to the pain
New Year’s resolutions
Coping with the holiday season
When pain exceeds coping strategies
Life choices and compromises for our health
All about goals and motivation when chronically ill
This life the existence
Stress the good and the bad
Wellbeing and the unlived life
Take your rest
Exercise is not evil
Fibromyalgia and relationships
On chronic pain impact
Moving Through Migraine Intensity
University Blues: Migraines in the Classroom
Vacationing with Your Migraines
Migraine Awareness Month
Food triggers: Hidden and Elusive
Me Vs the World
The Chronic Migraine Life: Such As It Is