Undiagnosed. I remember this well. I spent the majority of my childhood UNDIAGNOSED. The pain and fatigue where things I felt I didn't even have the right to complain about because, well, I had No Label to Defend it. And it took until the age of 16 to get even somewhat of a label: … Continue reading Undiagnosed: That limbo state
Sometimes when you are chronically ill and feel like a bag of steaming crapola all the time it is actually hard to tell if you have a normal run of the mill sickness. And sometimes it isn't. When it is easy to tell you are normal sick Hacking horrible cough from hell Flu that causes … Continue reading Symptom? Side effect? Or normal sick-sick?
Time for A Chronic Voice Blog Prompts! Looking Playing Joining Invigorating Looking I am looking for answers. My neurologist is pretty sure I do not have MS but I sure as hell do have a suspicious amount of lesions that look like demyelination. And it makes me wary. And I wonder if it is Not … Continue reading A Chronic Voice: February motivational slump
You may have heard people talk about Ableism. I often talk about stigma and discrimination but haven't used the term itself but it is the term. Like sexism, ageism and racism, ableism is a form of discrimination against disabled people by those who are not. Definition type of discrimination in which able-bodied individuals are viewed as normal … Continue reading What is Ableism?
I think we have to be wary when we work with chronic illness about the stress of work and the stress we are always under due to chronic illness or chronic pain... which can compound quite fast, especially if we are exceeding our limits in order to function at work. I wrote a post recently … Continue reading Chronic illness: Work burnout
Chronic negative stress does not do a body good. We all know this. Because we have pain and illness and so stress from That plus the life consequences of That causes a boatload of negative stress. We all know our mental and emotional wellbeing is as important as our physical wellbeing, but I don't know … Continue reading Chronic stress and the body