Nikki vestibular disorder

Ménière’s disease diagnosis

I talked to my doctor today about my rather awesome response to the medication SERC (betahistine dihydrochloride) and she did tell me that it does mean I have Ménière’s disease because otherwise I would have had no response at all. Now is Betahistine effective for Ménière’s disease? This is a question! Because the research says … Continue reading Ménière’s disease diagnosis

Nikki vestibular disorder

Vertigo: I found a treatment related to Ménière’s disease

I have had vestibular issues for over three years now with constant dizziness, balance issues and episodes of violent vertigo that vary in duration and length between them- very unpredictable. And I did the ENT thing. I did the vestibular clinic thing. And in the end I was told I was undiagnoseable. I had too … Continue reading Vertigo: I found a treatment related to Ménière’s disease

Nikki chronic illness, coping, vestibular disorder, vestibular migraine

Vestibular disorder: Stuck in dizziness hell zone

I was told by more than one medical professional they do not like the word dizzy. At all. Because too many sensations are encompassed under the word 'Dizzy'. My main complaints since I was disabled in 2017 was this non-stop dizziness, and disequilibrium, and balance issues. And also intermittent vertigo that happens randomly. And I … Continue reading Vestibular disorder: Stuck in dizziness hell zone

Nikki chronic illness, coping, coping with disability, disability, vestibular disorder, vestibular migraine

Undiagnosed: That limbo state

  Undiagnosed. I remember this well. I spent the majority of my childhood UNDIAGNOSED. The pain and fatigue where things I felt I didn't even have the right to complain about because, well, I had No Label to Defend it. And it took until the age of 16 to get even somewhat of a label: … Continue reading Undiagnosed: That limbo state