Pandemic life vs. disability life for me

I thought I would post the comparison between the normal person's Pandemic Life vs. My Disabled Life... currently. Because there are similarities and differences. Samesies The same with a normal person's experience with COVID-19 and having to stay at home with the stress, anxiety and rapid changes in their lives How my experience being disabled … Continue reading Pandemic life vs. disability life for me

Coronavirus: Tips on being stuck at home

Hey, people who are self-isolated, stuck at home, and don't know how long it will be for. I've been there for 3 years. I've been social distancing for far longer than that... I call it 'pacing' to conserve energy that I really do not have because I have had chronic pain for over two decades. … Continue reading Coronavirus: Tips on being stuck at home

Hey, healthy people, illness is no vacation

Oh, so you don't work! That must be like a Vacation Every Day! I saw you do a thing! You must be Fine! I saw you left the house! You must be cured! I saw you were on social media! You must be feeling Better! Yeah No. Let's look behind closed doors with some #SickSelfie … Continue reading Hey, healthy people, illness is no vacation

Undiagnosed: That limbo state

  Undiagnosed. I remember this well. I spent the majority of my childhood UNDIAGNOSED. The pain and fatigue where things I felt I didn't even have the right to complain about because, well, I had No Label to Defend it. And it took until the age of 16 to get even somewhat of a label: … Continue reading Undiagnosed: That limbo state