Reflections: Watched the Netflix documentary Unrest

'Unrest' is on ME/CFS and is pretty much about those very severe cases of ME/CFS where people end up basically living in their beds due to the intensity of their condition.

Disability Pride Month

In 2015, New York Mayor Bill de Blasio declared July as Disability Pride Month to celebrate the ADA’s 25th anniversary. Disability Pride Month commemorates the passage of the ADA (Americans with Disability Act) and promotes visibility and positive awareness, acceptance, and recognition, and educates others on being an ally. It’s also about reminding everyone that … Continue reading Disability Pride Month

Imposter Syndrome and chronic illness

I have had Imposter Syndrome for really all my life. Along with 70% of the population, at some time or another. Imposter syndrome is that feeling that any successes you have had are due to luck or some external influences outside of yourself. And not your skills, talent or qualifications. The psychologists Pauline Rose Clance … Continue reading Imposter Syndrome and chronic illness

Invisible disability and self-imposed stigma we learn from others

I read a post called The Bizarre Prevalence of Invisible Illness Imposter Syndrome and the author uses different terms and language to describe what I have felt as well. Essentially it is this pattern: With an invisible disability we mask our symptoms for a variety of reasons. To cope and manage working. So we will … Continue reading Invisible disability and self-imposed stigma we learn from others

Chronic illness: The Disabled line

DISABLED Well. Doesn't that word seem Heavy and filled with more Meaning than it actually has? Other people put more meaning on it that it actually has. Stigma like we are 'lazy' and 'mooching off the system' and 'just don't want to work' and 'most people on disability are just faking it' (because we make … Continue reading Chronic illness: The Disabled line

Chronic pain paradox: Talk about it? Keep quiet?

Then shut up about your pain. Maybe the only reason people are trying to help you is to get you to stop whining about it all the time.Random Social media comment by someone who is rather dickish I won't mention where the troll posted or their name. They like attention because they are weird and … Continue reading Chronic pain paradox: Talk about it? Keep quiet?