Hey, people who are self-isolated, stuck at home, and don't know how long it will be for. I've been there for 3 years. I've been social distancing for far longer than that... I call it 'pacing' to conserve energy that I really do not have because I have had chronic pain for over two decades. … Continue reading Coronavirus: Tips on being stuck at home
I have been thinking about this pandemic of the Coronavirus a lot since I have not left home at all. And there a few responses I have seen and have in regard to being chronically ill and higher risk during this. It is a lot of complex emotions. Obviously, this is a hard time for … Continue reading Coronavirus: The chronic illness view
I know you guys have read a lot about this. Too much. Panic!!! No, don't panic. Yes, PANIC! No, wash your hands. And panic. And social distancing. And panicking. And hoarding. And freaking out. And none of that is from the chronic illness community. That is from healthy people. So... we should be panicking MORE. … Continue reading Coronavirus: Isolation
Oh, so you don't work! That must be like a Vacation Every Day! I saw you do a thing! You must be Fine! I saw you left the house! You must be cured! I saw you were on social media! You must be feeling Better! Yeah No. Let's look behind closed doors with some #SickSelfie … Continue reading Hey, healthy people, illness is no vacation
Undiagnosed. I remember this well. I spent the majority of my childhood UNDIAGNOSED. The pain and fatigue where things I felt I didn't even have the right to complain about because, well, I had No Label to Defend it. And it took until the age of 16 to get even somewhat of a label: … Continue reading Undiagnosed: That limbo state
There is a lot of reasons why we develop beliefs about our pain. And how we should and shouldn't behave with it. How we should and shouldn't talk about it. How we should and shouldn't talk about it. And when you experience pain young sometimes that happens without much introspection and then you just run … Continue reading Why do I undermine my pain?