Coronavirus: Tips on being stuck at home

Hey, people who are self-isolated, stuck at home, and don't know how long it will be for. I've been there for 3 years. I've been social distancing for far longer than that... I call it 'pacing' to conserve energy that I really do not have because I have had chronic pain for over two decades. … Continue reading Coronavirus: Tips on being stuck at home

Coronavirus: The chronic illness view

I have been thinking about this pandemic of the Coronavirus a lot since I have not left home at all. And there a few responses I have seen and have in regard to being chronically ill and higher risk during this. It is a lot of complex emotions. Obviously, this is a hard time for … Continue reading Coronavirus: The chronic illness view

Hey, healthy people, illness is no vacation

Oh, so you don't work! That must be like a Vacation Every Day! I saw you do a thing! You must be Fine! I saw you left the house! You must be cured! I saw you were on social media! You must be feeling Better! Yeah No. Let's look behind closed doors with some #SickSelfie … Continue reading Hey, healthy people, illness is no vacation

Undiagnosed: That limbo state

  Undiagnosed. I remember this well. I spent the majority of my childhood UNDIAGNOSED. The pain and fatigue where things I felt I didn't even have the right to complain about because, well, I had No Label to Defend it. And it took until the age of 16 to get even somewhat of a label: … Continue reading Undiagnosed: That limbo state