Reflections: Watched the Netflix documentary Unrest

'Unrest' is on ME/CFS and is pretty much about those very severe cases of ME/CFS where people end up basically living in their beds due to the intensity of their condition.

Disability Pride Month

In 2015, New York Mayor Bill de Blasio declared July as Disability Pride Month to celebrate the ADA’s 25th anniversary. Disability Pride Month commemorates the passage of the ADA (Americans with Disability Act) and promotes visibility and positive awareness, acceptance, and recognition, and educates others on being an ally. It’s also about reminding everyone that … Continue reading Disability Pride Month

Imposter Syndrome and chronic illness

I have had Imposter Syndrome for really all my life. Along with 70% of the population, at some time or another. Imposter syndrome is that feeling that any successes you have had are due to luck or some external influences outside of yourself. And not your skills, talent or qualifications. The psychologists Pauline Rose Clance … Continue reading Imposter Syndrome and chronic illness

Invisible disability and self-imposed stigma we learn from others

I read a post called The Bizarre Prevalence of Invisible Illness Imposter Syndrome and the author uses different terms and language to describe what I have felt as well. Essentially it is this pattern: With an invisible disability we mask our symptoms for a variety of reasons. To cope and manage working. So we will … Continue reading Invisible disability and self-imposed stigma we learn from others

What are the factors to medical stigma for women with fibromyalgia?

When it comes to fibromyalgia and stigma in the medical community I have felt this influence several times in my life. And likely experienced in ways I Wasn't aware of consciously as well. Before I was diagnosed and having issues coping with pain I went to a doctor who then insisted I was 'just depressed'. … Continue reading What are the factors to medical stigma for women with fibromyalgia?

Invisible Disability: My illness is invisible. I am not.

I have invisible illnesses and I am disabled by some of them. Yes, you can't see them. Yes, they are invisible. But I am not. I matter. My life matters. My existence matters. You can't treat me as Lesser Than just because I am disabled, if you find out I am. You can't judge how … Continue reading Invisible Disability: My illness is invisible. I am not.