I was told by more than one medical professional they do not like the word dizzy. At all. Because too many sensations are encompassed under the word 'Dizzy'. My main complaints since I was disabled in 2017 was this non-stop dizziness, and disequilibrium, and balance issues. And also intermittent vertigo that happens randomly. And I … Continue reading Vestibular disorder: Stuck in dizziness hell zone
Undiagnosed: That limbo state
Undiagnosed. I remember this well. I spent the majority of my childhood UNDIAGNOSED. The pain and fatigue where things I felt I didn't even have the right to complain about because, well, I had No Label to Defend it. And it took until the age of 16 to get even somewhat of a label: … Continue reading Undiagnosed: That limbo state
The vestibular clinic adventure
Update on my vertigo situation So I finally made it into the vestibular clinic. There were three specialists including their neurologist. They asked me a bunch of questions, went over my results, and we did the usual stand with your eyes closed sort of funness. What they do know I definitely have vestibular migraine. And … Continue reading The vestibular clinic adventure
Chronic voice prompts: DEDICATING ESTABLISHING, STRENGTHENING, ALLOWING
Time for the monthly link-up with A Chronic Voice. Here are our prompts: DEDICATING ESTABLISHING BREAKING STRENGTHENING ALLOWING Just going to say 2018 was one big suckfest of life sucked away by uncontrollable symptoms. I am so done with it. Bring it, 2019. I am ready for you and we … Continue reading Chronic voice prompts: DEDICATING ESTABLISHING, STRENGTHENING, ALLOWING
The neurologist appointment
So last Thursday I went for a medical review with a neurologist on behalf of my insurance company. I know I have had vestibular migraine, sporadically, since around 2009. But this, this is something constant and enduring. I am just not sure it is the same. Neither is the ENT given the difference in my … Continue reading The neurologist appointment
What am I thankful for
It is Canadian Thanksgiving day. I had it yesterday and it was awesome. But it brings to mind what you are thankful for. Why it is hard to be thankful I am having a difficult time with chronic pain Plus vertigo. I am exhausted all the time. I need at least two extended rest periods … Continue reading What am I thankful for
