I am chronically ill and have been for some time. I don't desire another diagnosis. At all. Ever. In fact, I demand the fates make some sort of rule that human beings can only have three complicated medical issues in one lifetime. I mean really, that seems quite sufficient. It is not about the want … Continue reading Chronic illness: When in an undiagnosed limbo we want answers and action
Okay, so I saw my neurologist today about my follow up. I am on a waiting list for a follow-up MRI which will take a long time here due to some serious backlog. Nevertheless, we did the physical again and reviewed symptoms. Went over my chronic migraines and decided on putting me on Aimovig for … Continue reading Neurologist appointment: I Probably don’t have Multiple Sclerosis?! Yay!
So I have had this balance and vertigo and dizziness issues since November 2017. And I have done the ENT thing and I have seen a vestibular clinic and I did an MRI. And the MRI... well it didn't look so pretty, man. I have migraine lesions due to chronic migraine with aura. But I … Continue reading Multiple Sclerosis: New diagnosis?
What did you feel when diagnosed with fibromyalgia? I can tell you for me it was a relief. I had symptoms for years but being undiagnosed is difficult. You have to deal with it all but have no treatment, no label, and no real understanding of what you should do. I was coping well at … Continue reading What did you feel diagnosed with fibromyalgia?