With the loss of work and even before that, with the loss of self worth, my sense of self, disintegrated and I faltered on how to repair it. I didn't for some time. I just coasted. It has only been over the last four years I have really focused on repair and restructuring that real … Continue reading Chronic illness and the loss of sense of self
I have blogged about survival mode before. This is when we push through the pain long-term and get to a state where all other aspects of our lives shrink, we only do what is fundamentally necessary to exist and life is Just an existence. We do what we must and crash and burn at the … Continue reading Survival mode with chronic pain and the lack of options we have in society
How do you know someone is faking fibromyalgia? Hmm. This is a thing people google. And I can tell you the short answer right now is that statistically speaking if you assume they are not, you'd most likely be right. Because it is so rare that anyone fakes an illness. I know a lot of … Continue reading So you think someone is faking fibromyalgia?
The less functional I became over time with chronic pain and the more I struggled at work the more useless I felt. The more of a failure as a Person I felt. The more worthless I felt. This got worse as my life shrunk because I had less usable hours to be able to function … Continue reading Disability: Fulfillment without traditional work
You might of noticed, or not, that I usually do a post for Thursdays. But, well, my health is rather unpredictable right now and as a result I can't predict a good time of day or a good day to write. My chronic pain is as it always has been. It is a bit more … Continue reading Chronic Illness: On pause
I have invisible illnesses and I am disabled by some of them. Yes, you can't see them. Yes, they are invisible. But I am not. I matter. My life matters. My existence matters. You can't treat me as Lesser Than just because I am disabled, if you find out I am. You can't judge how … Continue reading Invisible Disability: My illness is invisible. I am not.