Chronic illness and the loss of sense of self

With the loss of work and even before that, with the loss of self worth, my sense of self, disintegrated and I faltered on how to repair it. I didn't for some time. I just coasted. It has only been over the last four years I have really focused on repair and restructuring that real … Continue reading Chronic illness and the loss of sense of self

Survival mode with chronic pain and the lack of options we have in society

I have blogged about survival mode before. This is when we push through the pain long-term and get to a state where all other aspects of our lives shrink, we only do what is fundamentally necessary to exist and life is Just an existence. We do what we must and crash and burn at the … Continue reading Survival mode with chronic pain and the lack of options we have in society

Invisible Disability: My illness is invisible. I am not.

I have invisible illnesses and I am disabled by some of them. Yes, you can't see them. Yes, they are invisible. But I am not. I matter. My life matters. My existence matters. You can't treat me as Lesser Than just because I am disabled, if you find out I am. You can't judge how … Continue reading Invisible Disability: My illness is invisible. I am not.