When I was younger and I was diagnosed with this thing called fibromyalgia syndrome that no one knew a thing about let alone how to treat I thought well that is that then... I will just deal with this and that will be it. Oh, how silly I was. Illnesses get lonely. They like to … Continue reading Invisible disabilities: The comorbids
So I encountered someone random on social media with an illness that said we should not discuss ableism because people do not get our illnesses and... it doesn't matter. I don't know his life but maybe he has not experienced pervasive stigma like some of us have such that we know the need to spread … Continue reading Chronic illness: Shh no one needs to know you’re chronically ill
Do you tell people about your chronic illness? Why? And why not? For me, it is a matter of having an invisible disability (obviously more visible now with the cane issue). With an invisible disability, there is a lot of revealing and there is a lot of concealing. Because we can decide what level … Continue reading Do you tell people about your invisible illness?
It is odd having an invisible disability. We are expected to perform like others, but we have some major limitations. But really I feel like I am melting into invisibility. That the stagnation of being unable to function is wasting away life. Wasting away quality of life. We have an invisible disability. We are not … Continue reading Don’t melt into invisibility
People do notice things about those of us with chronic illness but they may not know it is because of chronic illness. Maybe they think we are socially awkward, nervous, or extremely absent-minded. Or they may know we have a chronic illness and not attribute these traits to it. But most of all these things … Continue reading Chronic illness: How we are socially noticeable
We mask our pain We lose our pain behaviors We become invisible. We all learn to have a façade to hide the pain for various reason in various situations. Here are some http://bit.ly/2EUOYcD We do it to function in the workplace. To make our families no worry about us. To get through the day better. … Continue reading We wear our pain on the inside