'Unrest' is on ME/CFS and is pretty much about those very severe cases of ME/CFS where people end up basically living in their beds due to the intensity of their condition.
I read a post called The Bizarre Prevalence of Invisible Illness Imposter Syndrome and the author uses different terms and language to describe what I have felt as well. Essentially it is this pattern: With an invisible disability we mask our symptoms for a variety of reasons. To cope and manage working. So we will … Continue reading Invisible disability and self-imposed stigma we learn from others
I have invisible illnesses and I am disabled by some of them. Yes, you can't see them. Yes, they are invisible. But I am not. I matter. My life matters. My existence matters. You can't treat me as Lesser Than just because I am disabled, if you find out I am. You can't judge how … Continue reading Invisible Disability: My illness is invisible. I am not.
This year Invisible Disability Awareness Week falls on October 18th to 24th. According to the Invisible Disabilities Association, the term invisible disability refers to symptoms such as debilitating pain, fatigue, dizziness, cognitive dysfunction, brain injuries, learning differences, mental health disorders, as well as hearing and visual impairments. They are not always obvious to the onlooker, … Continue reading 6 Things to know about Invisible Disability Awareness
When I was younger and I was diagnosed with this thing called fibromyalgia syndrome that no one knew a thing about let alone how to treat I thought well that is that then... I will just deal with this and that will be it. Oh, how silly I was. Illnesses get lonely. They like to … Continue reading Invisible disabilities: The comorbids
So I encountered someone random on social media with an illness that said we should not discuss ableism because people do not get our illnesses and... it doesn't matter. I don't know his life but maybe he has not experienced pervasive stigma like some of us have such that we know the need to spread … Continue reading Chronic illness: Shh no one needs to know you’re chronically ill