Reflections: Watched the Netflix documentary Unrest

Unrest is a documentary on Netflix that came out in 2017. I heard someone mention it and it reminded me that I had wanted to watch that. So I decided to yesterday. The documentary is on ME/CFS and is pretty much about those very severe cases of ME/CFS where people end up basically living in … Continue reading Reflections: Watched the Netflix documentary Unrest

Invisible disability and self-imposed stigma we learn from others

I read a post called The Bizarre Prevalence of Invisible Illness Imposter Syndrome and the author uses different terms and language to describe what I have felt as well. Essentially it is this pattern: With an invisible disability we mask our symptoms for a variety of reasons. To cope and manage working. So we will … Continue reading Invisible disability and self-imposed stigma we learn from others

Invisible Disability: My illness is invisible. I am not.

I have invisible illnesses and I am disabled by some of them. Yes, you can't see them. Yes, they are invisible. But I am not. I matter. My life matters. My existence matters. You can't treat me as Lesser Than just because I am disabled, if you find out I am. You can't judge how … Continue reading Invisible Disability: My illness is invisible. I am not.

6 Things to know about Invisible Disability Awareness

This year Invisible Disability Awareness Week falls on October 18th to 24th. According to the Invisible Disabilities Association, the term invisible disability refers to symptoms such as debilitating pain, fatigue, dizziness, cognitive dysfunction, brain injuries, learning differences, mental health disorders, as well as hearing and visual impairments. They are not always obvious to the onlooker, … Continue reading 6 Things to know about Invisible Disability Awareness

Chronic illness: Shh no one needs to know you’re chronically ill

So I encountered someone random on social media with an illness that said we should not discuss ableism because people do not get our illnesses and... it doesn't matter. I don't know his life but maybe he has not experienced pervasive stigma like some of us have such that we know the need to spread … Continue reading Chronic illness: Shh no one needs to know you’re chronically ill