'Unrest' is on ME/CFS and is pretty much about those very severe cases of ME/CFS where people end up basically living in their beds due to the intensity of their condition.
I read a post called The Bizarre Prevalence of Invisible Illness Imposter Syndrome and the author uses different terms and language to describe what I have felt as well. Essentially it is this pattern: With an invisible disability we mask our symptoms for a variety of reasons. To cope and manage working. So we will … Continue reading Invisible disability and self-imposed stigma we learn from others
I have blogged about survival mode before. This is when we push through the pain long-term and get to a state where all other aspects of our lives shrink, we only do what is fundamentally necessary to exist and life is Just an existence. We do what we must and crash and burn at the … Continue reading Survival mode with chronic pain and the lack of options we have in society
How do you know someone is faking fibromyalgia? Hmm. This is a thing people google. And I can tell you the short answer right now is that statistically speaking if you assume they are not, you'd most likely be right. Because it is so rare that anyone fakes an illness. I know a lot of … Continue reading So you think someone is faking fibromyalgia?
The COVID-19 pandemic has had a massive impact on society and I wonder if it is conceivable it will have long-term impacts on it. The shock to societies will be felt for a very long time. From mourning the deaths to the financial impacts to the mental toll. We talk about the 'new normal' and … Continue reading Will society adapt for the better after the pandemic?
I have invisible illnesses and I am disabled by some of them. Yes, you can't see them. Yes, they are invisible. But I am not. I matter. My life matters. My existence matters. You can't treat me as Lesser Than just because I am disabled, if you find out I am. You can't judge how … Continue reading Invisible Disability: My illness is invisible. I am not.