Survival mode with chronic pain and the lack of options we have in society

I have blogged about survival mode before. This is when we push through the pain long-term and get to a state where all other aspects of our lives shrink, we only do what is fundamentally necessary to exist and life is Just an existence. We do what we must and crash and burn at the … Continue reading Survival mode with chronic pain and the lack of options we have in society

So you think someone is faking fibromyalgia?

How do you know someone is faking fibromyalgia? Hmm. This is a thing people google. And I can tell you the short answer right now is that statistically speaking if you assume they are not, you'd most likely be right. Because it is so rare that anyone fakes an illness. I know a lot of … Continue reading So you think someone is faking fibromyalgia?

Invisible Disability: My illness is invisible. I am not.

I have invisible illnesses and I am disabled by some of them. Yes, you can't see them. Yes, they are invisible. But I am not. I matter. My life matters. My existence matters. You can't treat me as Lesser Than just because I am disabled, if you find out I am. You can't judge how … Continue reading Invisible Disability: My illness is invisible. I am not.

Chronic illness: The Disabled line

DISABLED Well. Doesn't that word seem Heavy and filled with more Meaning than it actually has? Other people put more meaning on it that it actually has. Stigma like we are 'lazy' and 'mooching off the system' and 'just don't want to work' and 'most people on disability are just faking it' (because we make … Continue reading Chronic illness: The Disabled line

Chronic pain paradox: Talk about it? Keep quiet?

Then shut up about your pain. Maybe the only reason people are trying to help you is to get you to stop whining about it all the time.Random Social media comment by someone who is rather dickish I won't mention where the troll posted or their name. They like attention because they are weird and … Continue reading Chronic pain paradox: Talk about it? Keep quiet?