Nikki Awareness items, chronic illness, coping, Invisible disability awareness, society, stigma

Invisible Disability: My illness is invisible. I am not.

I have invisible illnesses and I am disabled by some of them. Yes, you can't see them. Yes, they are invisible. But I am not. I matter. My life matters. My existence matters. You can't treat me as Lesser Than just because I am disabled, if you find out I am. You can't judge how … Continue reading Invisible Disability: My illness is invisible. I am not.

Nikki chronic illness, chronic pain, disability, Discrimination, society, stigma

Chronic illness: The Disabled line

DISABLED Well. Doesn't that word seem Heavy and filled with more Meaning than it actually has? Other people put more meaning on it that it actually has. Stigma like we are 'lazy' and 'mooching off the system' and 'just don't want to work' and 'most people on disability are just faking it' (because we make … Continue reading Chronic illness: The Disabled line

Nikki chronic illness, chronic pain, disability, Discrimination, society, stigma

Chronic pain paradox: Talk about it? Keep quiet?

Then shut up about your pain. Maybe the only reason people are trying to help you is to get you to stop whining about it all the time.Random Social media comment by someone who is rather dickish I won't mention where the troll posted or their name. They like attention because they are weird and … Continue reading Chronic pain paradox: Talk about it? Keep quiet?

Nikki chronic illness, coping, disability, society, the life, wellbeing

Pandemic life vs. disability life for me

I thought I would post the comparison between the normal person's Pandemic Life vs. My Disabled Life... currently. Because there are similarities and differences. Samesies The same with a normal person's experience with COVID-19 and having to stay at home with the stress, anxiety and rapid changes in their lives How my experience being disabled … Continue reading Pandemic life vs. disability life for me

Nikki chronic illness, coping, mental health, self-care, wellbeing

Social isolation and mental wellbeing

What we are learning with the Coronavirus pandemic is that people need people. I know what people are going through. Most disabled people do know. We know all too well... because all this? It is the cost of disability.  We know financial insecurity We know losing our jobs We know financial instability when we lose … Continue reading Social isolation and mental wellbeing