Chronic illness: When in an undiagnosed limbo we want answers and action

I am chronically ill and have been for some time. I don't desire another diagnosis. At all. Ever. In fact, I demand the fates make some sort of rule that human beings can only have three complicated medical issues in one life time. I mean really, that seems quite sufficient. It is not about the … Continue reading Chronic illness: When in an undiagnosed limbo we want answers and action

Undiagnosed: That limbo state

  Undiagnosed. I remember this well. I spent the majority of my childhood UNDIAGNOSED. The pain and fatigue where things I felt I didn't even have the right to complain about because, well, I had No Label to Defend it. And it took until the age of 16 to get even somewhat of a label: … Continue reading Undiagnosed: That limbo state

Neurologist appointment: I Probably don’t have Multiple Sclerosis?! Yay!

Okay, so I saw my neurologist today about my follow up. I am on a waiting list for a follow-up MRI which will take a long time here due to some serious backlog. Nevertheless, we did the physical again and reviewed symptoms. Went over my chronic migraines and decided on putting me on Aimovig for … Continue reading Neurologist appointment: I Probably don’t have Multiple Sclerosis?! Yay!