Persistent postural-perceptual dizziness (PPPD) diagnosis

I was going to write a different post and earlier but I got a bit sick from my vestibular clinic appointment and it took a few days to recover from that. Anyway, they came up with a diagnosis. Sort of. It is a diagnosis of exclusion, as in they couldn't decide where I fit so … Continue reading Persistent postural-perceptual dizziness (PPPD) diagnosis

When you love to read but have a vestibular condition

I'm an avid reader. Or I WAS an avid reader. I would consume books. NOM NOM NOM. Inhale them. I would read a couple a week or more. Sometimes a book a day if it was a good one. I am a very fast reader and I just love reading so much. Then I developed … Continue reading When you love to read but have a vestibular condition

Vestibular disorder: Stuck in dizziness hell zone

I was told by more than one medical professional they do not like the word dizzy. At all. Because too many sensations are encompassed under the word 'Dizzy'. My main complaints since I was disabled in 2017 was this non-stop dizziness, and disequilibrium, and balance issues. And also intermittent vertigo that happens randomly. And I … Continue reading Vestibular disorder: Stuck in dizziness hell zone

Undiagnosed: That limbo state

  Undiagnosed. I remember this well. I spent the majority of my childhood UNDIAGNOSED. The pain and fatigue where things I felt I didn't even have the right to complain about because, well, I had No Label to Defend it. And it took until the age of 16 to get even somewhat of a label: … Continue reading Undiagnosed: That limbo state