I thought I would write a post about dealing with a vestibular disorder day to day to give you a peek into my life lately. Mind you, I also have chronic pain so that does complicate this tale of woe a lot. Nevertheless, I will focus on the actual vestibular symptoms. It is migraine awareness … Continue reading Vestibular disorder: The dizzy life
Vestibular disorder: Stuck in dizziness hell zone
I was told by more than one medical professional they do not like the word dizzy. At all. Because too many sensations are encompassed under the word 'Dizzy'. My main complaints since I was disabled in 2017 was this non-stop dizziness, and disequilibrium, and balance issues. And also intermittent vertigo that happens randomly. And I … Continue reading Vestibular disorder: Stuck in dizziness hell zone
Undiagnosed: That limbo state
Undiagnosed. I remember this well. I spent the majority of my childhood UNDIAGNOSED. The pain and fatigue where things I felt I didn't even have the right to complain about because, well, I had No Label to Defend it. And it took until the age of 16 to get even somewhat of a label: … Continue reading Undiagnosed: That limbo state
The vestibular clinic adventure
Update on my vertigo situation So I finally made it into the vestibular clinic. There were three specialists including their neurologist. They asked me a bunch of questions, went over my results, and we did the usual stand with your eyes closed sort of funness. What they do know I definitely have vestibular migraine. And … Continue reading The vestibular clinic adventure
The neurologist appointment
So last Thursday I went for a medical review with a neurologist on behalf of my insurance company. I know I have had vestibular migraine, sporadically, since around 2009. But this, this is something constant and enduring. I am just not sure it is the same. Neither is the ENT given the difference in my … Continue reading The neurologist appointment
Just too much rest
I do think rest is vital Napping when we need to Resting when we need to Pacing activities during the day All necessary. With vestibular issues I have been resting a lot. The majority of the day. If I do anything at all, I need more rest. Massive fatigue comes with vestibular problems. Standing … Continue reading Just too much rest
